Slow Summer - No Diagnosis

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Slow Summer - No Diagnosis

Postby PVF1799 » Sat Jul 25, 2015 8:48 pm

It's been a long summer for me. Everyone else is driving Rex'48 because I'm all laid up. In my earlier post called "Finally a Diagnosis" - they advised me I had Lyme disease. Started taking medication for that. Was told I was having a Herxheimer Reaction to he Lyme dying off...felt a bit better. A week ago yesterday, they advised me I don't have Lyme disease.

Since then and over the last 2+ weeks, I've pretty much been unable to walk, raise my arms, reach out to pick-up a darn cup of coffee. When standing it hurt to sit, when sitting it hurt to stand. Shoulders in terrible pain all the time.

A week ago yesterday they advised I might have Polymyalgia Rheumatica PMR. Onto 20mg Prednisone for 5 days after day 4 I felt normal again. On day 6 when they dropped the dose back to 10mg/daily I started to not be able to sit and stand. By day 7 yesterday - I was back on crutches and in the worst pain I've ever experienced.

I'm back on 20mg prednisone daily and just since yesterday - I can walk, use my arms but am afraid to do so. I've had more blood work since Memorial Day, than I've had in my entire life. More to come as I see Rheumatology specialist in August. All they can tell me right now is it must be some sort of auto-immune issue.

Hoping by fall - I'll be back restoring things and driving Rex'48 again.
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My Restoration Project - FCUB '48 - Rex

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Re: Slow Summer - No Diagnosis

Postby Bill Hudson » Sat Jul 25, 2015 8:51 pm

Whew! Sounds like you have had more than a rough time of it. Prayer has been lifted up.

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Re: Slow Summer - No Diagnosis

Postby Don McCombs » Sat Jul 25, 2015 9:04 pm

Hopefully, things will turn around for you soon, Ken. Keeps your spirits up.
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Re: Slow Summer - No Diagnosis

Postby ricky racer » Sat Jul 25, 2015 9:12 pm


Lifting you up in prayer, from Michigan. :(

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Re: Slow Summer - No Diagnosis

Postby randallc » Sun Jul 26, 2015 3:26 am

Man, hopefully this to shall pass and you can get back to your restoring self. Best of luck.
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Re: Slow Summer - No Diagnosis

Postby bob in CT » Sun Jul 26, 2015 5:38 am

Ken, has Babesiosis been considered?

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Re: Slow Summer - No Diagnosis

Postby Donegal Cub » Sun Jul 26, 2015 6:11 am

Sorry to hear of your illness, prayers from Donegal for your complete recovery.
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Re: Slow Summer - No Diagnosis

Postby Rob in NH » Sun Jul 26, 2015 9:17 am

hope your feeling better soon

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Re: Slow Summer - No Diagnosis

Postby Bezirk » Sun Jul 26, 2015 1:09 pm

Ken, prayers from VA. For your return to good health.

I started out with nothing and now I only have half of that left !

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Re: Slow Summer - No Diagnosis

Postby torchred89 » Tue Jul 28, 2015 3:15 pm

I had Rocky Mountain Spotted fever same family as Lyme. I went from running 7 miles every other day to not even being able to get out of a chair. It hit me about 24 hours after the tick was on me. Every joint in my body felt like somebody hit me with a ball bat. Put me in ICU for a week and took over a year to get back to somewhat normal. My joints still hurt when I do any work. The worst part is when you wake up in the morning and every joint hurts so bad you don't know if you are going to get out of bed. I guess I'm just getting old! Good luck hope you get over it.

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Re: Slow Summer - No Diagnosis

Postby brichter » Wed Jul 29, 2015 10:07 am

hope this passes, pulling for you to be back active soon
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