Abbigail is Home Temporarily

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Abbigail is Home Temporarily

Postby Rudi » Wed Aug 20, 2008 10:09 pm

Abby was released from hospital today. She is resting comfortably at the moment upstairs here with Memere and Pepere.. Mom and Dad need a break.... Here is the update as to what I understand.

1. She definitely has Laryngo Tracheal Malasia. Hopefully she will outgrow it in the near to very near future.. 6 months to 2 years if all goes well. Much longer if complications set in which is probable but not definite. No word yet on the EEG results. No word yet either on the possible Juvenile Diabetes tests.

2. She has pediatric GERD and is now on Pediatric doses of Prevacid, mixed in with her formula.

3. She is Lactose Intolerant, Alergic to Soy and other non dairy based forumula's such as Enfamil and Prosobee. She is now on a new product that is not even available OTC or via Prescription. It is funded entirely by our Medical System.. so it is really prohibitively expensive. It is non soy, non dairy and non a whole lot of other stuff.

4. She is feeding every 2 hours on 5 oz max of this new stuff. Will help with the GERD. She has been taken off of the Pablum experiment as babies under 6 months cannot be on it at all as it isn't sterilized. (somebody made a boo-boo).

5. She sees Dr. Giberson on Friday and we may know more about the scope and trip to the IWK and ther expanded prognosis and treatment plan.

Thank you for all of your prayers and wishes. It has helped to strengthen us as we walk down this path.. as is the Lord's intention. We humbly ask that you continue to pray for Abby as you can, and we will post when we know more.

Thanks again to all of you for helping us with our little angel (+) Peace to you all.
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Re: Abbigail is Home Temporarily

Postby Bill Hudson » Wed Aug 20, 2008 10:59 pm

Rudi,

Thanks for the update. Prayer has been sent. God bless you and your family.

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Re: Abbigail is Home Temporarily

Postby John *.?-!.* cub owner » Thu Aug 21, 2008 6:02 am

Makes me feel like my problems are insignificant. Our prayers are with Abbigail and the rest of the family
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Re: Abbigail is Home Temporarily

Postby Jim Roy » Thu Aug 21, 2008 7:11 am

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Thanks be to God that Abby has improved enough to be home. :worthy: :applause: :{_}:
We will continue to keep Abby in our prayers.
Thanks for keeping us posted, Please continue.

Jim
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Re: Abbigail is Home Temporarily

Postby John(videodoc) » Thu Aug 21, 2008 8:04 am

Great News!
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Re: Abbigail is Home Temporarily

Postby Bigdog » Thu Aug 21, 2008 8:24 am

Rudi - our thoughts and prayers continue to be with you.
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Re: Abbigail is Home Temporarily

Postby Mr E » Thu Aug 21, 2008 9:27 am

John *.?-!.* cub owner wrote:Makes me feel like my problems are insignificant. Our prayers are with Abbigail and the rest of the family


I can't say it any better than this.

Our prayers are with you, Rudi.
In the middle of every difficulty lies opportunity. - Albert Einstein


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Re: Abbigail is Home Temporarily

Postby RonM » Thu Aug 21, 2008 11:58 am

It seems like a long list of problems but at least you have answers and the doctors know how to treat them. Her being home is great news. Your family will be in our prayers.
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Re: Abbigail is Home Temporarily

Postby beaconlight » Thu Aug 21, 2008 6:46 pm

She has been in our prayers and we wish her all the best.
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Re: Abbigail is Home Temporarily

Postby VinceD » Thu Aug 21, 2008 8:04 pm

Thanks for the update.

Abby and her family have been, and will continue to be in our prayers.
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Re: Abbigail is Home Temporarily

Postby Corky's Cub » Thu Aug 21, 2008 10:57 pm

Rudi,

Glad to hear things are headed in a positive direction for Abbie...

Our prayers continue.

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Re: Abbigail is Home Temporarily

Postby Rudi » Fri Aug 22, 2008 9:01 pm

All:

Thanks again for all the prayers and support. It is really appreciated, and you know :?: it really does lighten the load a lot. Em and I have felt a little better all week, not as overwhelmed I guess. One thing I have learned in this very interesting life I lead, is that no problem is insignificant, or marginal. Sometimes I feel that there are so many more with much greater courage and strength to handle adversity than I have and I wonder where they get the strength to handle those problems. Each of us has a cross to bear, for some it may appear light (especially as we get used to it over long periods of time), for others it appears that the load is great, but we all must bear our burdens and when we have prayer and faith in the Lord, our burdens can seem lighter especially when we have Him walking with us :!: (+)

Abby saw Dr. Giberson today. He really is a good ENT guy and I trust him a lot.. as does Em. He feels that given the minimal scoping that can be done without anasthetic and the value of that regime does not warrant doing it. He believes that the full scope workup is the most viable and likely to provide definitive diagnosis of Abby's conditon and he prefers to order that up at IWK in Halifax. However, he is NOT comfortable with the need for a full general anasthetic especially with Abby's history. In children under 6 months, the risk for neurological damage (irreversible) is quite high as it is, but with Abby's history it is more probable. So, he really wants to wait and not risk any more possible damage than she may have already suffered.

This will of course entail a lot more observation, we will have to be very aware of what is happening all the time. It is only for another 2 months I guess, but he believes that with the courses we are on now, that it might be efficacious at this time. Soooo, I guess that is what we will do. We need to make sure that Abby has all the best chances and best choices to be made.

She is in the Lord's hands, He has his plan, be that definitely beyond our ken, so faith will preserve us and we will do as His will requires. The Lord gave us good doctors and nurses, so I guess it is our job to listen to them.

Peace (+)
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Re: Abbigail is Home Temporarily

Postby ellen » Sat Aug 23, 2008 6:59 am

Rudi wrote:All:
She is in the Lord's hands, He has his plan, be that definitely beyond our ken, so faith will preserve us and we will do as His will requires. The Lord gave us good doctors and nurses, so I guess it is our job to listen to them.

Peace (+)


AMEN

I will keep all of yall, including the Dr.s, in my prayers.
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Re: Abbigail is Home Temporarily

Postby redfin » Sat Aug 23, 2008 7:12 am

Rudi
You all are in our peayers . :||):
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Re: Abbigail is Home Temporarily

Postby Rudi » Sat Aug 23, 2008 10:17 pm

Abby is back in the hospital again. Didn't stay out even 48 hours. She had a seizure -- at least one, she is again in the pediatric ward under observation. Amanda called Em early this afternoon, I wasn't sure what was happening, no one was, Em went up, the next thing I knew Abby was admitted.

I keep this response from our Worship Service in my mind a lot

Our Help Is In the Name of the Lord.. Alleluia

I have no idea where some of you wonderful folks get the stamina to go through stuff like this. I know I am still a newbie at it, but God, does it hurt...... :cry:

Peace (+)
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