Yesterday was Sam's 365th day in hospital. Not a lot has changed, she still has much of the same problems. One of the good things that have happened is as a result of her twin Amanda's diagnosis of MS it that her neurologist has been looking in different areas. One of the problems he has identified is the on-set of an auto-immune response triggered by the RSD/CRPS issues. This response is a really difficult issue - and one in which her neurologist (same as Amanda's and mine) has enlisted the help of the Mayo Clinic. If any clinic can figure this out, it has to be the Mayo or so we are hoping.
Suffice to say that Sam has improved since our neurologist has started her on a steroid regime, in fact enough for her to be able to get into a power wheelchair. It was a God send for her as her goal was to come home for Christmas Day was realized. It was a great Christmas for our family. She had specialized transport (our new to us '99 DGC Handi-Van isn't quite ready) and came home at 10am. She spent the majority of the day with us and was picked up again at 4:30. It was hard on her and she payed for the day, but in her words it was definitely worth it.
Prayer, faith, attitude and a strong family connection/support base helps immensely when someone is trying to survive/progress in a situation like this. Without all of your prayers and support we know that it would have been a far more difficult road to travel if not almost impossible. So we wanted to share something with you all. Em and I are true believers in the power of prayer and in attitude. We have always tried to keep it upbeat with Sam (well any of our family who are having health issues), and it seems to have worked. Although Sam is still in hospital and her recovery is progressing somewhat (although not what we had hoped for by this time), there is lots that we are thankful for and a lot to be positive about. Sam and Em decided that since her anniversary was upcoming, that instead of marking it with a negative connotation it was time to do something positive and celebrate the positives.
So we had a little party
Butter Cream from Costco
Wish we could send you a piece
Thanks again for all of your prayers and support over the past year. We have multiple challenges in the health arena, but each one taken separately, managed with faith, prayer and support makes them all manageable. Well.. somewhat
Please keep Sam in your prayers, she is a very long way from being out of the woods yet.